Do This Not That: How to Be There for the Family of a Seriously Ill Child

In 2006, Rich and Traci Maynard watched their daughter receive a heart transplant … and the transplant fail. Their 4-year-old daughter, Erika Kate, died that June. But since then, they’ve established the Erika Kate Foundation to help other families of seriously ill children like Erika financially, spiritually, and emotionally.

Here, the foundations offers some do’s and don’ts for helping families of ill children.

Everyone hears what you say.
Friends listen to what you say.
Best friends listen to what you don’t say.
Author Unknown

Don’t try to “fix” things.
DO offer solutions to small daily challenges: provide rides or entertainment for a sibling, bring a home-cooked meal, shovel snow, etc.
Don’t use cliches or try to compare your past experience to theirs.  Comparisons can minimize the pain they are experiencing.
DO be genuine in your responses and acknowledge that you don’t know what to say but want to listen and care.
Don’t attempt to cheer them up—just be there for them.  Be as supportive as you can.
DO be willing to just sit in silence. Show your support if they do want visitors.
Don’t scold, give advice, or lecture. There is no right or wrong way to experience this crisis.
DO listen and support them when they share feelings—even when feelings or behaviors seem extreme to you.
Don’t forget that their challenges may continue for weeks, months, or years past the initial crisis/diagnosis.  The experiences of families who are not in the hospital are often very challenging.
DO pray for your friend.  Prayer is a great source of encouragement and comfort.
Don’t avoid asking about the child because the answer might be difficult.  Yet, don’t probe for lots of specific information.
DO volunteer to make it possible for a parent to have alone time or date time with their spouse.
DO organize an activity in which the family can participate in order to have a break/smile.
DO give blood or become an organ donor in the child’s honor.
DO something.  Don’t wait for them to ask for a favor.

I’m Sick … So Stay Away!

Our household was hit by some kind of virus this weekend. Christy and Jonathan were really sick. Christopher felt really bad and had a fever. And I had my turn at being the primary caregiver!

William_Summey-22.jpgI thought about how everyone seems to respond differently to being sick. I have been told several times how I am not a good patient and tend to want to sleep and just be left alone! Christy is definitely just the opposite, enjoying conversation and companionship even in the midst of being sick. And I think the boys are a mix of us both. They both get grumpy but also need some close attention.

One moment illustrated this well. I stayed up with Jonathan when he was sick but trying to go to sleep. He was uncomfortable with his stomach hurting so he didn’t want anyone too close. I sat at the foot of his bed. Then he asked if I would hold his feet while he went to sleep! A funny request, but it summarized this whole conversation: Sometimes when you are sick you need your space, but need someone close by at the same time taking care!

Obviously sickness is no fun. There is a reason why patients and patience sound so much alike but can be opposites! But in retrospect, it definitely made us slow down and we had some fun time together in the midst of it all.

I hope you are staying well this summer. When your kids are sick, what kind of patients are they?

Taking Care of Yourself

I’m afraid this week I am learning the hard way the importance of taking care of yourself as a parent. Life in the Skulley household has been anything but calm during the month of July. We’ve been going nonstop at work, church, and home … full speed ahead … until the end of last week when both Jack and I became sick, bringing everything to a screeching halt. Jack had a cold that quickly became an ear infection, and I came down with a cold that quickly turned into the never-ending cough/sinus infection. Needless to say, it has not been a fun few days.

67.bubblebath.jpgUltimately, this sickness has been a reality check for me. It is the perfect real-life example of how stress (both good stress and bad stress) can take its toll over time. I have been reminded of how important it is to slow down, reduce stress, and take care of myself so that I can take care of my family.

Weeks ago, I should have taken the advice of Kathy Firkins, the writer for the July 2009 ParentLife article "Super Stressed." She talks about how stress is physical, mental, and emotional. She also provides her "Top 10 Instant Stress Relievers." If you’re feeling stressed, don’t miss this article.

How do you deal with stress? What are the most effective stress relievers that you have found to work for you?