A Gift of Joy by Ellen Stumbo

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source: Tulane Publications

She claps her hands, smiles, and her eyes sparkle with excitement.

“Mom! Daddy!” she says, inviting us to clap along with her.

It doesn’t matter what we are doing, every time, every single time we find her joy irresistible. So we clap with her. In her excitement, she takes a bow and laughs. So we cheer for her and clap some more.

When her movies finish, as the credits roll and the fun music plays, we go through this routine. Sometimes I wonder if she thinks, “That was a great show, it was fun, I really enjoyed it. I feel so happy I cannot contain myself, I need to clap, cheer, and invite others to join me in this moment of joy.”

My daughter might face extra challenges because she has Down syndrome, but her ability to enjoy life and celebrate every day moments surpasses the ability I have to do the same. So she stands before me clapping, smiling, with joy radiating from her little body and I can feel that joy and excitement.

She gifts her enthusiasm about life, and it is contagious.

I sometimes hear people question if people with Down syndrome or other disabilities are contributing members to society. Maybe once I wondered the same thing. But I know better now. While their contributions might not include being doctors, scientist, or teachers, their contributions pierce through the very essence of what makes us human: love, joy, kindness, compassion, understanding, and complete acceptance. Contributions that have already touched my heart and changed my life.

So I clap and celebrate when the Barbie show is over. I delight in the little girl that takes a bow, and sometimes I bow with her too, a sign of thankfulness for the joy she brings into my life. The gratitude I have that God chose me to be her mother.

Ellen Stumbo is a writer and speaker. She is the mother of three daughters: Ellie; Nichole, who has Down syndrome; and Nina, who was adopted and also has special needs. She is wife to Andy, a pastor.

Comments

  1. Marcia Wong says:

    i love ppl w/ down syndrome b/c every one i’ve met and seen/observed are so kind, compassionate, sweet, funny (the list goes on!)… some of these awesome characteristics ‘regular’ ppl can’t even pull off. to me, ppl w/ down syndrome contribute MORE to society than some doctors, lawyers, etc. ever will. so i adore ppl w/ down syndrome and always will.

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